The “Forrest Gump” Comparison

My heart was trampled on this week by my son’s pediatric developmental specialist.  She didn’t mean to do it.  She was doing her best to explain the inexplicable because (I assume) there’s no medical textbook explanation for my three year old son.  Some of his behaviors are characteristically autistic, while most are not.  She couldn’t give him the “complete autism diagnosis” because not all he does (or doesn’t do) pertain to the disorder.  She called him a “very slow learner”, he has “lack of intelligence” and compared him to “Forrest Gump”.  Had we been outside in the hallway or out of the building, I probably would’ve went to jail for second degree assault for kicking her ass, but, we were in her office and she was doing her best to make a complex condition very plain to me.  Her explanation sounded more like a surrender than a diagnosis.  She told me to start preparing now to have to care for my son for the rest of his life, and make legal plans for his care in case me or his father died.  I left the appointment feeling extremely burdened and discouraged.  Soon after, I had another appointment with another agency regarding my son.  They checked his growth rate, which has fallen below average for a child his age.  It’s what I expected to hear because I told them my son refuses to eat.  They repeated techniques for me to try that simply do not work for him.  I know because I’ve been trying them for over two years.  I know I’ve never heard of such, and you may not have either, but an anorexic three year old boy exists.  And I can’t believe he’s my son.  I’m hoping he’s not the only one, and there is some medical explanation out there that hasn’t been brought to light yet.  Even Forrest Gump was smart enough to eat.

The “Forrest Gump” reference bothered me a lot.  I had knots in my chest, lumps in my throat, and tears in my eyes for a couple of nights until I stopped reacting and started thinking.  First of all, I love the movie.  It’s one of my favorites and in my opinion, best shows one man and his many achievements in spite of his “lack of intelligence.”  The movie best displayed how a person doesn’t  have to be smart (by society’s definition) to reach Forrest’s level of accomplishments and prestige.  And, the catalyst to Forrest’s success was the sacrifice and strong will of his mother from the very beginning.  Thank God times have changed a lot, so I will not be sleeping with any school administrators to get my son placed into programs; however, I will continue to have him enrolled in programs and be an active participant in his education.  I was an active in-school volunteer for my daughters when they were growing up.  Both of them are full-time college students now.  (I told the pediatrician as well because it was the only ‘comeback’ I had for the “Forrest Gump” comparison.)

I was angry.  Too angry to cry tears even.  I had words of discontent for God, but didn’t dare utter them.  I had to recite the Lord’s Prayer many times out loud before I felt myself calming down.  I was pissed off like an employee who had been promised a holiday off, but then got scheduled to work it because of some issue beyond their control.  I felt Jesus was betraying me, for having me and my son survive all we had to live like this–in the scrutiny of others and simplistic adolescent behaviors turned into complex obstacle courses.  But, if I didn’t have this going on, I wouldn’t have anything to blog about because I’m basically a boring person.  I mostly stay home, and take care of my family, a lot like Mrs. Gump, and I can’t be mad at that.


Super Mom-dom–Raising a Learning Disabled Child

My first few blogs were intended to give a brief recount of the past to bring readers up to date about me.  I am still learning to blog, and I found it difficult to start at the actual day of my first blog.  So, I went back in time to explain why I am where I am today.  I raised two daughters who are adults and thriving.  I have a toddler son who has global developmental delay and PDD-NOS, both considered to be on the autism spectrum.  He is three with the behaviors of an almost two year old.  We had a check-up for him yesterday where the doctor gave me discouraging news.  I try not to take it personally.  It’s her job to tell me the worst so we (my son’s father and I) can prepare and provide the best we can.  My son is currently enrolled in every early learning development program available to us through our state.  He receives multiple therapies and instructional learning several days a week.  However, it’s truly a mind-numbing and patience practicing experience to raise a learning disabled child.  I’ve had to learn how to be more patient and slow down my expectations of him.  It’s not as awful as it sounds.  In fact, it’s quite beneficial to the both of us.  He’s unable to talk, but uses actions to let me know when he’s thirsty, hurt, tired, or needs a diaper change.  Before having my son, my philosophy about diaper changing was only for people two years old and younger.  Training my son has trashed that belief.  My son wouldn’t come near his potty seat.  He doesn’t like going to the bathroom with his father.  Therefore, I had to combine two activities.  I used his potty seat as a sitting place at his table.  He felt comfortable sitting on it at the table rather than stand alone.  Now, I have to figure out how we’re going to practice getting his pants down, and then diaper off.  This is a big difference from when I raised my girls.  They were easy to train because they could speak, listen and comprehend.  My oldest daughter practically potty trained my younger daughter.  My son doesn’t have siblings or playmates his age to learn skills from. Kids learn from one another better.  I saw that with my daughters.  But, since I don’t have access to other kids at the moment, my son has to learn from me, which means I have to go down to his level, not try and forcefully bring him up to my level.  Over the years with my son, I’ve gotten plenty of unsolicited advice, mostly from grandmothers with old wives tales.  “Don’t give him anything else but vegetables.  He’ll eat them when he’s hungry.”  “You do too much for him.  He should be able to do that by now.”  “Stop carrying him around and he’ll walk.”  “Mothers nowadays give in to kids too much, making them spoiled.”  There’s plenty more, but I’ll stop there.  None of these comments are true when it comes to my son.  His will to hold out is longer than mine.  I’m not going to starve him when he is willing to starve himself.  He’s never been like regular children who have to put everything in their mouths.  He is very picky about what he puts in his mouth.  It has to pass his sight, touch and smell examinations.  Just about anything on a spoon is automatically rejected.  He doesn’t eat candy because it gets sticky.  His lack of eating is becoming a bigger problem as he gets older.  He’s falling behind on the growth scale, something I anticipated months ago and reported to his physicians.

I was very young when I had my daughters.  I thought that raising them to become independent, intelligent, and careful was the epitome of parenthood.  I tried my best to make sure they didn’t replicate the mistakes I did, which was basically not giving myself a chance to live life before accepting someone else’s type of love to sustain me.  They have made me proud, but most of all, they are happy and successful.  I’m taking a small amount of credit for that.  It wasn’t easy by any means, and there were a lot of obstacles in their childhoods.  (“18 Years of Grace and Mercy: A Teenage Mother’s Testimony, Vol.1  Amazon, B&N, Goodreads,  However, in myself I failed a lot, but in my daughters I succeeded.  I thought I was the greatest mother on Earth, and had parenthood by the short and curlies. But now…

This journey, of raising a learning disabled child is what I call the golden ticket into “Super Mom-dom” (or “Super Dad-dom”, think “kingdom” but in the realm of parenthood).  I feel like I am getting to know my son rather than him getting to know me or the surrounding world.  Every day is a learning experience.  Not just for him, but for me too.